Live your life from your heart. Share from your heart.
And your story will touch and heal people’s souls.
– Melody Beattie
sharing my life story
I am 32 years old and I live in Denver, CO. I was diagnosed about 8 years ago with Rheumatoid Arthritis, a chronic auto-immune disease that I will struggle with for the rest of my life. The diagnosis has now been changed to Psoriatic Arthritis, which is psoriasis of the skin in addition to rheumatoid arthritis in the joints. Before my diagnosis, I was a ballerina for 18 years, studied classical piano for almost 20 years, and was pursuing my Masters of Fine Arts in Advertising Account Planning at the Academy of Art University. I work as a Project Manager at a small events planning agency, which keeps me creative. Now that I struggle with chronic joint pain and fatigue, food allergies, daily granny pill boxes full of medications, monthly infusions at a hospital and monstrous medical bills, I feel like an 80 year-old trying to live a 30-something-year-old’s life. It has been difficult to give up some of my passions and become less active over the past few years. But I am learning the small ways to stay strong and start new hobbies, so that this disease won’t control my life. And these daily battles and chronic figurings-out are what I’m going to share with you – because even if I just touch one person with my story, it will be a success.
why a blog, you ask?
Not only is my daily life flooded with overcoming my disease while pursuing my career as a young adult, my new marriage, and traveling (which is one of my passions), there’s another chronic pain in the butt that comes along with all of this – the big bad health insurance system. I am weekly, if not daily, filing rebuttals and resubmitting paperwork for claims with health insurance companies, doctors offices and specialty pharmacies just to keep up with the overflow of medical bills and expenses. It is a frustration that I have had to take into my own hands and constantly fight for my rights and needs as the patient – as a victim of this malfunctioning system. I can’t help but think how many people are victims of this big bad system because they don’t understand how they are being taken advantage of – and that’s why I started a blog. Plus, it’s a great way for my family and friends to keep up with my constant adventures and struggles, successes and disappointments, and to see how I’m fighting against this diagnosis on a daily basis. Most importantly, I hope to change someone else’s life, or simply create awareness, by sharing my story.
Now you can find me on facebook!